Policy position 1
People in Ireland should have instant access to a summary of their medical records in user-friendly language on an accessible government website. Similar to e.g. Revenue.ie they could log in to see a history of their appointments, treatments, medications, and so on.
Policy position 2
People should have instant access to their full medical record up to and including clinical notes from a doctor’s appointment. It should be fully transparent: the patient should be able to see everything the healthcare professional sees.
Policy position 3
People should have access to their medical record, but upon request. This would ensure that healthcare professionals have the opportunity to determine the sensitivity or confidentiality of certain data.
Policy position 4
Individuals own their medical data, so we should trust them to share when they are comfortable doing so. People should be able to control access to and sharing of their own medical data using an opt-in system for everything from an x-ray to notes from a meeting with their consultant.